What I wish I had known about fibromyalgia (part 2)

(Part 1 of this blog was published on March 18, 2018.  Please click here to read it.)

If you wonder at times if you’ve got brain fog, it’s probably your brain saying hey – you better change something because my connections aren’t working so well today.

Unexpected physical symptoms will occur: low grade fevers, food intolerances, migraines from bright lights, feeling agitated, ringing ears, extreme tenderness to touch (even your scalp), deep physical fatigue, and funny, rearranged words like kin pushion instead of pin cushion will pop out of your mouth during conversation. Don’t be alarmed. Take a few deep breaths and center yourself. Then immediately get some rest. These are FM symptoms that come and go. There are too many additional physical sensations to list, so I’ll just encourage you to lovingly accept yourself, stay positive, and think about something that you enjoy.

Surround yourself with uplifting beauty. Be honest about setting health goals – walking for two minutes daily and cutting out wheat are realistic places to start. Keep moving because your muscles will stiffen up after staying in one position for more than 15 minutes. Stay hydrated to lessen your headaches.

After enduring the brain-seizing pains and life-altering symptoms, you still have two big, hard things to do. Eliminating both toxic relationships and allowing a period of grieving over “what could have been” will improve your health. Connect your mind and body and spirit. Learn to love yourself.

Recognize when depression sets in and let someone know what’s happening. Be open to talk therapy. Tools—ways of changing how you see things—will free your mind of cultural taboos about being sick.

Be present. Regularly let yourself be off duty and watch clouds. Your brain needs a rest because it’s been so busy managing the extrasensory perception and overload of neurochemicals.

A different, interesting, and purposeful life is ahead of you. Your life will be enriched in ways you cannot anticipate now. Hang in there. Connect with others who understand. Together you’ll learn to love life again.

Gentle hugs,


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