Connecticut Seashore Together Walk

DATE:  Saturday, May 13, 2017
TIME: 8 AM Registration; 10 AM Walk
LOCATION:  Camp Harkness
ADDRESS:    301 Great Neck Road, Waterford, CT 06385
REGISTER: Crowdrise.com/CTTogetherWalk
*For step-by-step registration instructions, please CLICK HERE.

JOIN CONVERSATION:  Together Walk Facebook Event

Independent Order of Odd Fellows Niantic Lodge 17, in collaboration with the National Fibromyalgia & Chronic Pain Association, is delighted to host a Together Walk.  Come and meet others!  Please invite your family, friends, colleagues, elected officials, and healthcare providers to a health and fun event to raise awareness and research funding for fibromyalgia.


Interested in advertising, sponsorship, or exhibitor opportunities? Contact Sarah, the Connecticut event coordinator, at 860-625-4218 or pondlilly1@comcast.net.

Together Walks to combat chronic pain public health crisis

50 percent of all veterans and 80 percent of veterans returning from Iraq and Afghanistan suffer with chronic pain.

News – FOR IMMEDIATE RELEASE

February 7, 2017

LOGAN, Utah – The National Fibromyalgia & Chronic Pain Association, a global community supporting individuals living with fibromyalgia and other chronic pain diseases, will join for 1K/5K Together Walks in cities across the nation in honor of Fibromyalgia Awareness Day on May 12.

Walks will be held in California, Oregon, Illinois, North Carolina, Virginia, Kentucky, Connecticut, Tennessee and Pennsylvania. The events include a 1K/5K walk, an educational program, a health expo, a raffle and musical entertainment. Individuals can also raise funds and awareness in their local community by creating a team in the Virtual Together Walk.

“One in three U.S. adults, 50 percent of all veterans and 80 percent of veterans returning from Iraq and Afghanistan suffer with chronic pain,” said Jan Chambers, NFMCPA president and founder. “Life-altering, chronic pain is real, and effective pain relief is needed now. We cannot ignore the public health crisis of chronic pain any longer.”

Reports by the U.S. Institute of Medicine and the Department of Defense show that more than 100 million American men, women and children are impacted by chronic pain and that chronic pain costs the nation $635 billion annually in health care costs and lost productivity.

Fibromyalgia – one of many invisible, chronic pain diseases –  affects 5 million Americans, according to the National Institute of Arthritis and Musculoskeletal and Skin Diseases. The illness involves long-term body-wide pain, fatigue, sleep disturbances, memory problems and impaired functionality.

“Untreated pain such as fibromyalgia has a devastating impact on individuals, families, communities and our nation. The opioid crisis reflects the lack of available treatment options,” Chambers said. “Your voice matters. Join Together Walks where people in pain have a voice.”

Together Walks are open to the public, individuals living with chronic pain, and their friends, family and caregivers. The walks unite communities to advocate for better access to care, to encourage and fund research into integrative treatments and to increase fibromyalgia awareness, education, resources and support.

Through joining or donating to Together Walks, individuals can:

  • Raise fibromyalgia awareness by educating local communities and political leaders about the disease
  • Alleviate stigmatization of people suffering with chronic pain diseases
  • Create more research funding for new exploration in areas such as small fiber neuropathy, cervical cord compression and myofascial release that may bring new pain treatment
  • Increase support by providing local, accessible resources and information for daily living to patients
  • Promote the ramifications, including financial consequences, of chronic pain to the public, legislators, medical community and government agencies.

Together Walks will be held the following dates in the following cities:

Together Walks in Louisville, Kentucky; Nashville, Tennessee; and Portland, Oregon, will coincide with September Pain Awareness Month. Dates are pending.

To donate to or register for a Together Walk, visit crowdrise.com/togetherwalks. For more information, visit togetherwalks.org.

All Together Walk and NFMCPA leaders are volunteers. To volunteer or host a Together Walk in your city, contact the NFMCPA at info@togetherwalks.org.

About the National Fibromyalgia & Chronic Pain Association (NFMCPA)
25 Federal Avenue, Logan, UT  84321; (O) 801-200-3627; (F) 435-753-3556

NFMCPA, a not-for-profit organization, supports individuals living with fibromyalgia and other chronic pain illnesses by raising awareness through community outreach, education, advocacy and networking. Visit: http://www.fmcpaware.org/, www.facebook.com/nfmcpa, www.twitter.com/fibroandpain.

CONTACT

Amanda Wray, Communications Director
amanda.nfmcpa@gmail.com; (O) 801-200-36278

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Virtual Together Walk

DATE:  May 1-31,2017
LOCATION:  In Your Community or Online
REGISTER:  crowdrise.com/virtualtogetherwalk
*For step-by-step registration instructions, please CLICK HERE.
JOIN CONVERSATION: Virtual Together Walk Facebook Event

The National Fibromyalgia & Chronic Pain Association are delighted to host a Virtual Together Walk just for you! Please invite your family, friends, colleagues, elected officials, and healthcare providers to a healthy, fun event to raise awareness and research funding for fibromyalgia.

Why a virtual walk?

It’s for YOU.

We’ve organized a virtual Together Walk so you can form fundraising and friendraising teams online, even while you are at home. Everyone can participate regardless of health status or ability to travel to specific locations. You can participate in the Together Walks by donating, fundraising, or walking locally. The changes that you make for people impacted by life-altering, chronic pain diseases is amazing and appreciated.

How does a virtual walk work?

A virtual walk raises awareness of chronic pain diseases and funds for research. It is created online and can have a live event in the community. Both use the Crowdrise registration process. For NFMCPA recommendations for a successful community event, use the step-by-step guides below.

Online

  1. Join the Virtual Together Walk and set a team fundraising goal. Form a team of your friends, neighbors, support group members, and family. Or choose to participate on your own, knowing you are part of something bigger! Raise funds for research. For ideas, check out the fundraising toolkit.
  2. Order the official Together Walk t-shirt to raise awareness everywhere you go! You make a difference.

Live in your community

  1. Join the Virtual Together Walk and set a team fundraising goal. Form a team of your friends, neighbors, support group members, and family. Or choose to participate on your own, knowing you are part of something bigger! For ideas, check out the fundraising toolkit.
  2. Pick a location and date to host your local walk. Rolling, strolling, walking, or running is best scheduled during the month of May in celebration of May 12 Fibromyalgia Awareness Day. Choose your distance: you may walk around the block, do a 1K walk at the local mall, or even try a longer walk or run around your neighborhood. Do what you can. There is no distance too short. Post a team update on Crowdrise with the details! Want an example? See Terry McSweeney’s 2016 Virtual Team – Fibromyalgia Pathways.
  3. Order the official Together Walk t-shirt, and create team signs to raise awareness during your local walk.
  4. Take a photo of you or your team and share it on social media or email it to us at info@togetherwalks.org. We invite you to use #TogetherWalks and #IWalkForFibro. Tag us @togetherwalks on Twitter, Instagram, or Facebook.  We invite you to share anyway or anywhere!

Nashville Together Walk

DATE:  September 2017
TIME: Coming soon!
LOCATION:  Coming soon!
ADDRESS:    Nashville, TN
REGISTER: Coming soon!
*For step-by-step registration instructions, please CLICK HERE.
JOIN CONVERSATION:  Coming soon!

Fibro Friends of Tennessee, in collaboration with the National Fibromyalgia & Chronic Pain Association, is delighted to host a Together Walk.  Come and meet others!  Please invite your family, friends, colleagues, elected officials, and healthcare providers to a health and fun event to raise awareness and research funding for fibromyalgia.

Check back for details soon! We’re excited to launch registration in January and hope to see you all there!


Interested in advertising, sponsorship, or exhibitor opportunities? Contact the Nashville team at nashville.fibro.friends@gmail.com.

Please click here to learn more about our Nashville organizers and follow the Fibro Friends of Tennessee on Facebook at https://www.facebook.com/fibrofriends1/.

Richmond Together Walk

DATE:  Saturday, May 13, 2017
TIME: 11 AM Registration; 12 PM Walk
LOCATION:  Stony Point Fashion Park
ADDRESS:    9200 Stony Point Parkway, Richmond, VA  23235
REGISTER: Crowdrise.com/RichmondTogetherWalk
*For step-by-step registration instructions, please CLICK HERE.
JOIN CONVERSATION:  Richmond Together Walk Facebook Event

Richmond Fibromyalgia and Chronic Pain Association, in collaboration with the National Fibromyalgia & Chronic Pain Association, is delighted to host a Together Walk.  Come and meet others!  Please invite your family, friends, colleagues, elected officials, and healthcare providers to a health and fun event to raise awareness and research funding for fibromyalgia.


Interested in advertising, sponsorship, or exhibitor opportunities? Contact the Richmond team at 804-859-4622 or sue@richmondfibro.org.

Please click here to learn more about our Richmond organizers, visit http://richmondfibro.org, or follow the group on twitter @RichmondFibro.

Pennsylvania Together Walk

DATE:  Saturday, May 20, 2017
TIME: 9:00 AM Registration; 10:00 AM Walk Opening
LOCATION:  Meet at Coplay Park Pavilion and walk on Ironton Rail Trail
ADDRESS:  245 N. 2nd Street, Coplay, PA 18037
REGISTER: Crowdrise.com/PATogetherWalk
*For step-by-step registration instructions, please CLICK HERE.
JOIN CONVERSATION:  Pennsylvania Together Walk Facebook Event

Conquering Fibromyalgia Support Group, in collaboration with the National Fibromyalgia & Chronic Pain Association, is delighted to host a Together Walk.  Come and meet others!  Please invite your family, friends, colleagues, elected officials, and healthcare providers to a health and fun event to raise awareness and research funding for fibromyalgia.


Want to help out? We love our volunteers!  Please go to follow these easy steps to learn more and sign up.  Thanks!

1) Click this link to see our online signup: www.SignUpGenius.com/go/409054EA5AC2BA7F49-volunteers
2) Review the options listed and choose the spot(s) you like.
3) Sign up! It’s Easy – you will NOT need to register an account or keep a password.


Are you interested in advertising, sponsorship, or exhibitor opportunities? Contact the Pennsylvania Walk Lead Coordinator Kerry Zahn at conqueringfibromyalgia@gmail.com or 908-399-2434.

 

Sacramento Organizer

fm-pathways-logoFibromyalgia Pathways led by Terry McSweeney was created to help those with fibromyalgia find health, hope, and happiness. This can be done in 2 ways, through 1-1 coaching by phone from the comfort of your own home/and or by joining our support group, which meets on the 2nd and 4th Monday of each month at the Sunlight of the Spirit Book & Gift Shop at 2314 J St., Sacramento, CA. 95816. It is also our goal to bring fibromyalgia awareness to Sacramento and its surrounding areas by leading the Sacramento Together Walk, to be held on Sunday, May 21, 2017 at the Sacramento Capitol Building on the south steps at N & 11th Streets.

Chicago Together Walk

DATE:  Saturday, May 13, 2017
TIME: 8:00 AM Registration; 10:00 AM Opening Ceremonies
LOCATION:  Hickory Creek Forest Preserve
ADDRESS:    10537 W. LaPorte Road, Mokena, IL  60448
REGISTER: https://www.crowdrise.com/ChicagoTogetherWalk
*For step-by-step registration instructions, please CLICK HERE.
JOIN CONVERSATION:  https://www.facebook.com/events

Chicagoland Allies Against Pain, in collaboration with the National Fibromyalgia & Chronic Pain Association, is delighted to host a Together Walk.  Come and meet others!  Please invite your family, friends, colleagues, elected officials, and healthcare providers to a health and fun event to raise awareness and research funding for fibromyalgia.

Join us for musical entertainment from Proving Ground and a special educational program. Chiro One Wellness will also be providing free, on-site medical checks. We’re thrilled to have Dr. Melissa Geraghty presenting at the Chicago Together Walk.

Geraghty 18Dr. Melissa Geraghty, Psy.D. is a health therapist at Rago & Associates in Naperville, IL. Her primary specialties include: chronic pain, chronic illness, physical disabilities, and eating disorders. She is a national speaker and author, presenting workshops around the country (and around the world online) to help better educate healthcare professionals and the public on chronic pain. Dr. Geraghty is the recipient of the 2016 Hero of Hope Award from the International Pain Foundation (iPain). She is also the 2015 recipient of the Midwest Pain Society’s Clinical Excellence Award. Dr. Geraghty is an iPain Medical Advisory Board Member, a 2016 iPain Featurette, is published in the iPain Living Magazine, and is an iPain Delegate. She is also an Advocate with the U.S. Pain Foundation and is a participant in the U.S. Pain Foundation’s 2017 INvisible Project: Migraine Edition. Dr. Geraghty’s professional Facebook (@MindfulMomentsByDrG) and Twitter (@MindfulDrG) allow her to spread awareness on physical and psychological difficulties, as well as post information on mindfulness. Dr. Geraghty lives with chronic pain and multiple physical disabilities.

Bidding for the silent auction will begin at 8 a.m. and close at the end of the opening ceremonies.  The winners will be announced during the closing ceremonies. We’d love to have you participate and can’t wait to walk with you! Bring lawn chairs and snacks to enjoy the entertainment and spend the morning with new friends! Four-legged friends are invited, too! But please bring something to pick up after them.

A special thanks to the Chicago Center for Myofascial Pain Relief for
providing hands-on pain relief trigger point therapy and for the fun and
easy pre and post walk session; “Move and Stretch; Pain Relief for Those
With Fibromyalgia and or Myofascial Pain Syndrome (MPS).”14_109_CCMPR_logos-01

 

 

 

MaryBiancalanaAbout Mary Biancalana: Mary has been working with people with all types of pain since 1999. She is the past Director of Therapy for the Fibromyalgia Treatment Centers Of America,(2000-2006)  a multidisciplinary clinic that was extremely successful in eliminating and reducing the pain and dysfunction from Fibro/ Lyme Disease/ Myofascial Pain Syndrome/ Hypermobility Syndrome/CFS/ and post-accident trauma. She is a up-beat and energetic speaker and practitioner who has authored many articles and books on chronic pain and the effective treatment for this pain. Currently the Director of the Chicago Center for Myofascial Pain Relief under the guidance and Direction of Dr. Renee Hartz.

A special thanks to Chiro One Wellness Centers for offering free medical checks at the Chicago Together Walk!

ChiroOne_Logo_RGB


Want to help out? We love our volunteers!  Please go to follow these easy steps to learn more and sign up.  Thanks!

1) Click this link to see our online signup: http://signup.com/go/sgteD5
2) Review the options listed and choose the spot(s) you like.
3) Sign up! It’s Easy – you will NOT need to register an account or keep a password on VolunteerSpot.


Interested in advertising, sponsorship, or exhibitor opportunities? Contact the Chicago team at 2017chicagofibrowalk@gmail.com or 815-514-0046.

Click here to learn more about the Chicagoland Allies Against Pain.

Join the Together Walks on Facebook!

Meeting new friends and making fibromyalgia visible – May 12 Fibromyalgia Awareness Day

Join us on Facebook!

1. Follow and like the Together Walks at https://www.facebook.com/togetherwalks

2. Follow and like the NFMCPA at http://www.facebook.com/nfmcpa

3. Join the Facebook event for your Together Walk to stay updated and connect with other walkers.

Join the Richmond Together Walk
Join the Louisville Together Walk
Join the Coral Springs Together Walk
Join the Central Florida Together Walk
Join the Nashville Together Walk
Join the Virtual Together Walk

4. Click HERE to download a Together Walk profile picture and tag your friends you want to invite! Use #IWalkForFibro and #TogetherWalks so we can see your posts!

Nashville Organizer

A big THANK YOU to the Fibro Friends of Tennessee networked by Donna Marsh, an NFMCPA Leader Against Pain.

Want to help out? We love our volunteers!  Please follow these easy steps to learn more and sign up.  Thanks!

1) Click this link to see our Sign-up on VolunteerSpot: http://vols.pt/dDHdiL
2) Review the options listed and choose the spot(s) you like.
3) Sign up! It’s Easy – you will NOT need to register an account or keep a password on VolunteerSpot.

Interested in advertising, sponsorship, or exhibitor opportunities? Contact the Nashville team at nashville.fibro.friends@gmail.com.

The Fibro Friends of Tennessee is a coalition of dedicated volunteers working to provide education, support and resources to people in Tennessee. We understand pain personally and believe by increasing awareness and support about fibromyalgia and chronic pain, we can change lives for the better.  We provide free monthly support meetings in Nashville and invite everyone to attend. Learn more on our Facebook page https://www.facebook.com/fibrofriends1 or contact us at nashville.fibro.friends@gmail.

The Fibro Friends of Tennessee is forming support groups in Tennessee.   Contact Donna at nashville.fibro.friends@gmail for opportunities to get involved now!