Together Walks Checklist

 

Welcome back to the Together Walks Blog! We wanted to create a simple checklist of some things that you can do to prepare for your upcoming together walk. Here we go!

  1. Go follow us on Facebook, Twitter, and Instagram.
  2. Check out the blog posts. (Which we see you have already found :P)
  3. Clear your schedule for May 12th
  4. Register for a Together Walk!
  5. Invite your family members to join you.
  6. Invite your friends to join you.
  7. Invite your…….how about you just invite anyone and everyone you know.
  8. Spread the word. We want to make the world more aware of exactly what fibromyalgia and chronic pain is. YOU can help us do that.

Chronic Pain and Fibromyalgia are difficult but are made easier with people to help along the way.  Support the community by inviting everyone to come be educated and walk together with us!

How did President John F. Kennedy advance research on chronic pain?

All of our presidents have a story to tell, and this snapshot tells how one impacted recognition of chronic pain.

We say “thank you” to President John F. Kennedy on this Presidents Day for inspiring us to keep trying when it seems impossible.  Kennedy was our 35th president and the youngest ever elected.  Presidents Day is an American holiday observed on the third Monday in February annually to commemorate all U.S. presidents though it originally celebrated George Washington’s birthday during his presidency. 

According to Men’s Health, the image Kennedy conveyed was of a “young, vigorous man.” However, the lively man portrayed to the public had another part of his life that wasn’t as visible. J.F.K. suffered from a series of medical issues, the worst being his chronic lower back pain.

One of the doctors who had a hand in helping this president was Janet Graeme Travell.

An American physician and a medical researcher, Dr. Travell studied and practiced in many different places including Wellesley College, Cornell University Medical College, New York Hospital, Seaview Hospital, and Beth Israel Hospital. Travell was a leading pioneer in the study of referred pain and the discovery of trigger points in musculoskeletal pain. Her many different techniques for the treatment of myofascial pain led to her becoming the first female physician to Senator John F. Kennedy. When Kennedy was elected for president, she was then called to be his personal doctor.

While at the White House, she became an Associate Clinical Professor of Medicine at George Washington University. After leaving the White House, she continued to teach, attend conferences, and write articles. Travells’ research and over 100 scientific articles contributed to furthering the concept of  myofascial pain syndrome (MSP) secondary to trigger points and the recognition of symptoms like muscle pain, spasms, and tenderness.

The cause of MSP is unknown but is a chronic condition that affects the fascia (connective tissue that covers the muscles).  Pain can be referred to the soft tissues, and inflammation is often present.

Trigger points (TPs) or “knots” in the muscle are sensitive spots in soft tissue which can lead to the chronic condition of MSP. Optimal treatment of MPS is a multi-faceted approach including TP injections, stretching of fascia, stress reduction, physical therapy, sleep improvement, and medications.  MSP is generally localized muscle pain affecting one side of the body or one side more than the other.  The symptoms often mimic fibromyalgia, where muscle and soft tissue pain is diffuse and symmetric, involving both sides of the body.

Travell’s work advanced research for fibromyalgia and chronic pain, but it has it should have. We want to change that. Together Walks is a way to support this research. The money raised will go to the further research for fibromyalgia and chronic pain. We hope you will take the opportunity to make a difference.

Beyond the Together Walks

Do you have a Together Walk Scheduled near you? If so, we are excited for you to be a part of it. If not, join us on a virtual walk!

The National Fibromyalgia & Chronic Pain Association is delighted to host a Virtual Together Walk just for you! Please invite your family, friends, colleagues, elected officials, and healthcare providers to a healthy, fun event to raise awareness and research funding for fibromyalgia.

We’ve organized a virtual Together Walk so you can form fundraising and friendraising teams online, even while you are at home. Everyone can participate regardless of health status or ability to travel to specific locations. You can participate in the Together Walks by donating, fundraising, or walking locally. The changes that you make for people impacted by life-altering, chronic pain diseases is amazing and appreciated.

There are 5 main steps to become a part of these virtual walks.

First, go online to togetherwalks.org and join a Virtual Together Walk and start up a team fundraising goal. If you can’t get a team together, you can participate on your own.

Second, order the T-shirt online. If you are able to go out and organize the event, the second step would be to pick a location and date to host your local walk.

Third, SHARE! We want to inform the world on FB and Chronic Pain. Sharing can help with this goal. Just make sure to use the hashtags #TogetherWalks and #IWalkForFibro.

So wherever you are, you can be a part of the fun. You can be a part of educating people all over the world. You can make a difference!

Together Walks…What are they all about?

First and foremost, welcome to the Together Walks website! I’m guessing since you got this far, you have been introduced to Together Walks. Here is a little more insight to give you a better idea of what we are here for.

Together Walks are developed in partnership with local organizers and sponsored by the NFCPA. This is the National Fibromyalgia & Chronic Pain Association. Our main purpose is to unite patients, policy makers, and healthcare, medical and scientific communities to transform lives through visionary support, advocacy, research and education of fibromyalgia and chronic pain illnesses.

Together Walks make this goal a little more visible with ACTION.

Together walks are events hosted around the world to increase FM awareness, education, resources, and support for research in the general public, medical communities, legislators, and people affected by FM. Together Walks give us a unique opportunity to put our information and knowledge into action. They bring our community together to support our loved ones with FM or Chronic Pain.

Every person involved in these Together Walks can have a positive influence on their community. It makes it possible to share with people worldwide just how important it is to be aware of FM and Chronic Pain.

Below are a few of the things that YOU can do to make a difference by being a part of Together Walks.

  • Raise FM awareness by educating local communities and political leaders about this condition and its impact
  • Alleviate stigmatization of people suffering with FM and chronic pain diseases
  • Create more pilot research funding, especially in the field of effective integrative treatments and new exploration in areas such as small fiber neuropathy, cervical cord compression, and myofascial release which promises new treatments
  • Increase support by providing local, accessible resources and information for daily living to patients
  • Promote awareness of the ramifications, including financial consequences, of chronic pain to the public, legislators, medical community and government agencies

We want you to remember that YOU can make a difference! Invite your friends, family, and neighbors to join us in this wonderful event.