2018 Pennsylvania Walk

DATE:  Saturday, May 12, 2018
TIME: 8:30 AM Registration Begins; 10:30 AM Opening Ceremonies
LOCATION:  Hickory Creek Forest Preserve
ADDRESS:    7125 Scenic View Drive, Macungie, PA 18062
REGISTER: events.fibroandpain.org
JOIN CONVERSATION:

Ain’t no shame in chronic pain is proud to host the Pennsylvania Together Walk in 2018. We all have a disease yet none of us have it the same way. Whether it is multiple sclerosis, fibromyalgia, sjogren’s, small fiber neuropathy, or something else we all suffer. Many of us have similar symptoms yet different diagnosis. Many of us share similar treatments and medications. Help us bring awareness to us and help us to be the voice in the issues we are facing and for the treatments of the future.

The Olympic Spirit Lives in Us!

The Olympics is a time of celebration and triumph that we can all enjoy and relate to.  Athletes dedicated to their sport who have overcome challenges and setbacks lift our spirits.  They kept trying and learned from their mistakes.  A big hurrah and thank you to them for sharing their joy!

Feeling triumphant on achieving benchmarks in our own personal journeys feels like winning a competition against the hard stuff, the challenges that seemed insurmountable.  Just as Olympic athletes achieve their sporting goals, our goals can be achieved with strategic planning.  More is required of us to feel strong and well.  Figuring out how to have good (and great) days that stretch into weeks and months pays off.

The  Stanford Self-Management program for chronic disease teaches how to break goals down into doable action items, and then outcomes are reported to a partner.  Each goal is assessed for anticipated obstacles and  solutions are determined.  Anticipating and strategically planning for obstacles significantly improves the likelihood of success.

Criteria in setting S.M.A.R.T. goals guides objectives and outcomes.  S usually means specific; M – measurable; A – attainable; R – relevant; and T – timely.

Combining these two methods of setting health objectives (goals) can be powerful.  Successful little steps build a foundation for understanding what you’re presently capable of and what’s realistic for next goals.

Recognize and celebrate achievements.  For resilience, include resting periods (or plateaus) and success milestones in goal setting and outcome planning.

We’re here to cheer you on and celebrate your successes.  Please consider setting a goal to join a Together Walk and bringing a friend.  See you at the Together Walks!

What is fibromyalgia?

Who is affected?

This invisible, life-altering condition causes 2-4% of women, men and children of all backgrounds worldwide to suffer.  (That’s 10 million Americans alone.)  The disorder can strike suddenly or occur as a gradual increase in symptoms, indicating changes in the central nervous system (neuroplasticity).  Sensory information (such as light, sound, and touch) becomes amplified by the central nervous system, causing the brain to respond with increasing pain and symptoms.  FM severity often increases over time and may become disabling.

FM takes its toll on once healthy individuals, especially between ages 20-60.  Escalating stress and fear of what might lie ahead if symptoms worsen can contribute to anxiety and depression.  There are no cures for fibromyalgia; however, as with any illness, some symptoms can be controlled with carefully improved lifestyle changes.

FM is a physical disorder, not a psychological condition. The most common constellation of FM symptoms (widespread chronic muscle pain, sleeplessness, relentless fatigue, cognitive dysfunction, and a host of other overlapping conditions like TMJD, IBS, migraine, interstitial cystitis, metabolic syndrome, endometriosis, and vulvodynia) can wax and wane over time.

For more information, click here go to and for survey results of symptoms other than pain, click here.

NFMCPA Celebrates Launch of Together Walks!!

The National Fibromyalgia & Chronic Pain Association (NFMCPA) has partnered with local organizations in three U.S. cities to host its inaugural Together Walks in May, fulfilling the organization’s mission to raise fibromyalgia awareness and fund research into the disorder that will lead to better treatments.

The Together Walks will be held in Richmond, Virginia, on May 7, and Coral Springs, Florida, and Louisville, Kentucky, on May 15. The USATF-sanctioned 1K Together Walks will be held in local parks and feature live music, health vendor expos, and educational and inspirational fibromyalgia programs, in addition to the walk. Participants will receive an event t-shirt and educational materials about fibromyalgia.

Fibromyalgia is a chronic condition characterized by generalized pains along with other symptoms such as unrefreshing sleep, stiffness, and cognitive dysfunction. An estimated 10 million Americans, 2-4% of population, have fibromyalgia as a primary diagnosis.

Through Together Walks, the NFMCPA is creating an opportunity for patients with this diagnosis to have an action-oriented, healthy event for their friends, family, neighbors, and health care providers to support them in a positive, uplifting way. These events are foundational for the NFMCPA to continue strengthening its four tenets: increase of support, awareness, education, and research globally.

“The National Fibromyalgia & Chronic Pain Association is building on its current, personal campaign of ‘Your Voice Matters: Make Fibromyalgia Visible’ to empower people with FM to take the next step of actively engaging their communities to participate in an event,” NFMCPA President Jan Chambers says. “Active engagement is the next step after raising awareness.”

Based on previous experience, the NFMCPA anticipates at least 250 people at each walk and more than 1,000 people in a virtual walk for the 2016 Together Walks. The virtual walk provides a platform for people to create teams online, from the comfort of their home. Everyone can participate despite their health status or ability to travel to specific locations.

Together Walks unite communities in the ideology that together we can make a difference, raise FM awareness, advocate for better access to care, and encourage and fund research that leads to better treatments.

The National Fibromyalgia & Chronic Pain Association brings together patients, policymakers, and healthcare, medical and scientific communities to transform lives through visionary support, advocacy, research, and education of fibromyalgia and chronic pain illnesses.

To register for a Together Walk near you, please visit http://www.crowdrise.com/togetherwalks.

Celebration in Coral Springs!

Meeting new friends and making fibromyalgia visible – May 12 Fibromyalgia Awareness Day

DATE:  Sunday, May 15, 2016
TIME: 9:00 AM registration; 10:00 AM Walk Opening
LOCATION:  North Community Park
ADDRESS:    5601 Coral Springs Drive, Coral Springs, FL
REGISTER:  crowdrise.com/togetherwalkcoralsprings
JOIN CONVERSATION:  Together Walk Coral Springs Facebook Event

Florida Fibromyalgia & Chronic Pain Association, in collaboration with the National Fibromyalgia & Chronic Pain Association, is delighted to host a Together Walk.  Come and meet others!  Invite your family, friends, colleagues, elected officials, and healthcare providers to a health and fun event to raise awareness and research funding for fibromyalgia.

Want to help out? We love our volunteers!  Please go to follow these easy steps to learn more and sign up.  Thanks!

1) Click this link to see our Sign-up on VolunteerSpot: http://vols.pt/oXsTRi
2) Review the options listed and choose the spot(s) you like.
3) Sign up! It’s Easy – you will NOT need to register an account or keep a password on VolunteerSpot.

Interested in advertising, sponsorship, or exhibitor opportunities? Contact the Coral Springs team at floridafibro@gmail.com.

Click here to learn more about our local organizer!

Celebration in Louisville!

Meeting new friends and making fibromyalgia visible – May 12 Fibromyalgia Awareness Day

DATE:  Sunday, May 15, s016
TIME:  9:00 AM registration; 10:30 Walk Opening
LOCATION:  Brown-Foreman Lawn, Waterfront Park
ADDRESS:    1301 River Road, Louisville, KY
REGISTER:  crowdrise.com/togetherwalklouisville
JOIN CONVERSATION:  Together Walk Louisville Facebook Event

Kentuckiana Fibromyalgia Support Group, in collaboration with the National Fibromyalgia & Chronic Pain Association, is delighted to host a Together Walk.  Come and meet others!  Please invite your family, friends, colleagues, elected officials, and healthcare providers to a health and fun event to raise awareness and research funding for fibromyalgia.

Want to help out? We love our volunteers!  Please go to follow these easy steps to learn more and sign up.  Thanks!

1) Click this link to see our Sign-up on VolunteerSpot: http://vols.pt/YC33rk
2) Review the options listed and choose the spot(s) you like.
3) Sign up! It’s Easy – you will NOT need to register an account or keep a password on VolunteerSpot.

Interested in advertising, sponsorship, or exhibitor opportunities? Contact the Louisville team at 812-207-5728 or fibromeetup@gmail.com.

Click here to learn more about the KFSG or visit www.kentuckianafm.org.