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2018 Chicago Together Walk

DATE:  Saturday, May 12, 2018
TIME: 8:00 AM Registration Begins; 10:00 AM Opening Ceremonies
LOCATION:  Hickory Creek Forest Preserve
ADDRESS:    10537 W. LaPorte Road, Mokena, IL  60448
REGISTER: events.fibroandpain.org
JOIN CONVERSATION:  https://www.facebook.com/events

With the help of the community and local donors, this event hopes to further awareness, bring education to those who still do not know and raise funding for research behind this horrible, debilitating illness of fibromyalgia and other connecting types of chronic pain.

Join us for musical entertainment while medical experts will be on hand providing a short program of educational motivational talks.

Interested in advertising, sponsorship, or exhibitor opportunities? Contact the Chicago team at chicagolandfibrowalk@gmail.com or 815-514-0046.

WALK AGENDA

8:00 AM-10:00 AM:

  • Bidding for the silent auction.  The winners will be announced during the closing ceremonies.
  • Chicago Trigger Point Pain Relief will have medical experts on hand providing a short program of educational and motivational talks.  Participants will also find empowering support resources offering self-treatment education.
  • Chiro One will be on site providing wellness checks for all who would like to participate.
  • Free water & Capri Sun Juice, bananas, apples, granola bars, Nutri-grain bars & Special K breakfast bars will be available for all participants.
  • We have over $1100 in raffle and silent auction items up for grabs.  Raffle tickets are $1 ea or 13 for $10.  Items will be raffled off at any time throughout the walk, so be sure to purchase your tickets early!  Each walker will receive a free raffle ticket when they check in.

10:35 AM: Pre-walk stretch & warm up with Mary Biancalana.

12:30 PM: Closing Ceremonies

  • Awards given and silent auction winners announced.  You MUST BE PRESENT TO WIN!

GENERAL INFORMATION

THIS EVENT WILL HAPPEN RAIN OR SHINE!  PLEASE DRESS FOR THE WEATHER!

Bring a lawn chair.  There will be limited picnic table seating for the opening ceremonies.  There will be motivational & inspirational speakers that will last approx. 30 min.

The path is paved and wheelchair accessible with a ramp from the parking lot.

Four-legged friends are invited, too! But please bring something to pick up after them.

We’d love to have you participate and can’t wait to walk with you, and enjoy the entertainment and spend the morning with new friends!

250x100 Mediflow Logo

 

A special thanks to Mediflow for donating a waterbase pillow to our silent auction.

 

 


Want to help out? We love our volunteers!  Please go to follow these easy steps to learn more and sign up.  Thanks!

1) Click this link to see our online signup: http://signup.com/go/sgteD5
2) Review the options listed and choose the spot(s) you like.
3) Sign up! It’s Easy – you will NOT need to register an account or keep a password on VolunteerSpot.


Interested in advertising, sponsorship, or exhibitor opportunities? Contact the Chicago team at chicagolandfibrowalk@gmail.com or 815-514-0046.

Click here to learn more about the Chicagoland Allies Against Pain.

The Olympic Spirit Lives in Us!

The Olympics is a time of celebration and triumph that we can all enjoy and relate to.  Athletes dedicated to their sport who have overcome challenges and setbacks lift our spirits.  They kept trying and learned from their mistakes.  A big hurrah and thank you to them for sharing their joy!

Feeling triumphant on achieving benchmarks in our own personal journeys feels like winning a competition against the hard stuff, the challenges that seemed insurmountable.  Just as Olympic athletes achieve their sporting goals, our goals can be achieved with strategic planning.  More is required of us to feel strong and well.  Figuring out how to have good (and great) days that stretch into weeks and months pays off.

The  Stanford Self-Management program for chronic disease teaches how to break goals down into doable action items, and then outcomes are reported to a partner.  Each goal is assessed for anticipated obstacles and  solutions are determined.  Anticipating and strategically planning for obstacles significantly improves the likelihood of success.

Criteria in setting S.M.A.R.T. goals guides objectives and outcomes.  S usually means specific; M – measurable; A – attainable; R – relevant; and T – timely.

Combining these two methods of setting health objectives (goals) can be powerful.  Successful little steps build a foundation for understanding what you’re presently capable of and what’s realistic for next goals.

Recognize and celebrate achievements.  For resilience, include resting periods (or plateaus) and success milestones in goal setting and outcome planning.

We’re here to cheer you on and celebrate your successes.  Please consider setting a goal to join a Together Walk and bringing a friend.  See you at the Together Walks!

Beyond the Together Walks

Do you have a Together Walk Scheduled near you? If so, we are excited for you to be a part of it. If not, join us on a virtual walk!

The National Fibromyalgia & Chronic Pain Association is delighted to host a Virtual Together Walk just for you! Please invite your family, friends, colleagues, elected officials, and healthcare providers to a healthy, fun event to raise awareness and research funding for fibromyalgia.

We’ve organized a virtual Together Walk so you can form fundraising and friendraising teams online, even while you are at home. Everyone can participate regardless of health status or ability to travel to specific locations. You can participate in the Together Walks by donating, fundraising, or walking locally. The changes that you make for people impacted by life-altering, chronic pain diseases is amazing and appreciated.

There are 5 main steps to become a part of these virtual walks.

First, go online to togetherwalks.org and join a Virtual Together Walk and start up a team fundraising goal. If you can’t get a team together, you can participate on your own.

Second, order the T-shirt online. If you are able to go out and organize the event, the second step would be to pick a location and date to host your local walk.

Third, SHARE! We want to inform the world on FB and Chronic Pain. Sharing can help with this goal. Just make sure to use the hashtags #TogetherWalks and #IWalkForFibro.

So wherever you are, you can be a part of the fun. You can be a part of educating people all over the world. You can make a difference!

2018 Together Walks to combat public health crisis of chronic pain

News – FOR IMMEDIATE RELEASE

February 7, 2018

LOGAN, Utah – The National Fibromyalgia & Chronic Pain Association, a global community supporting individuals living with fibromyalgia and other chronic pain diseases, will join for 1K/5K Together Walks in cities across the nation in honor of Fibromyalgia Awareness Day on May 12.

Walks are scheduled in California, Illinois, Pennsylvania, Mississippi, Missouri, virtually, and in satellite cities.  Planned activities include a 1K/5K walk, educational program, health expo, raffle and musical entertainment. Individuals can also raise funds and awareness in their local community by creating a virtual Together Walk team.

“One in three U.S. adults, 50 percent of all veterans and 80 percent of veterans returning from Iraq and Afghanistan suffer with chronic pain,” said Jan Chambers, NFCPA president and founder. “Life-altering, chronic pain is real, and effective pain relief is needed now. We cannot ignore the public health crisis of chronic pain any longer.”

Reports by the U.S. Institute of Medicine and the Department of Defense show that more than 100 million American men, women and children are impacted by chronic pain and that chronic pain costs the nation $635 billion annually in health care costs and lost productivity.

Fibromyalgia – one of many invisible, chronic pain diseases –  affects 10  million Americans according to Pub Med. The illness involves long-term body-wide pain, fatigue, sleep disturbances, memory problems and impaired functionality.

“Untreated pain such as fibromyalgia has a devastating impact on individuals, families, communities and our nation. The opioid crisis reflects the lack of available treatment options,” Chambers said. “Pilot research funding on fibromyalgia symptoms and impact raised by patients and their communities is critical. Join Together Walks where people in pain have a voice.”

Together Walks are open to the public, individuals living with chronic pain, and their friends, family and caregivers. The walks unite communities to advocate for better access to care, to encourage and fund research into integrative treatments and to increase fibromyalgia awareness, education, resources and support.

Through joining or donating to Together Walks, people can:

  • Network and meet new friends in their community;
  • Educate about the debilitating, life-altering, financial and personal impact of FM;
  • End stigmatization of people suffering with chronic pain diseases;
  • Raise pilot research funding for new studies to discover a cure for FM; and
  • Learn about local resources for pain and symptom relief to improve quality of life.

Together Walks will be held the following dates in the following cities:

To donate to, or register for a Together Walk, visit events.fibroandpain.org. For more information, visit togetherwalks.org.

All Together Walk and NFCPA leaders are volunteers. To volunteer or host a Together Walk virtually or in your city, please contact the NFCPA at info@togetherwalks.org.

_______________________________________

About the National Fibromyalgia & Chronic Pain Association (NFCPA)
25 Federal Avenue, Logan, UT  84321; (1) 801-200-3627; (F) 435-753-3556

NFCPA, a not-for-profit organization, supports individuals living with fibromyalgia and other chronic pain illnesses by raising awareness through community outreach, education, advocacy and networking. Visit: http://www.fmcpaware.org/, www.facebook.com/nfmcpa, www.twitter.com/fibroandpain.

CONTACT

Parker Jenks, Together Walks Director
parker.nfmcpa@gmail.com; (1) 801-200-3627

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Together Walks…What are they all about?

First and foremost, welcome to the Together Walks website! I’m guessing since you got this far, you have been introduced to Together Walks. Here is a little more insight to give you a better idea of what we are here for.

Together Walks are developed in partnership with local organizers and sponsored by the NFCPA. This is the National Fibromyalgia & Chronic Pain Association. Our main purpose is to unite patients, policy makers, and healthcare, medical and scientific communities to transform lives through visionary support, advocacy, research and education of fibromyalgia and chronic pain illnesses.

Together Walks make this goal a little more visible with ACTION.

Together walks are events hosted around the world to increase FM awareness, education, resources, and support for research in the general public, medical communities, legislators, and people affected by FM. Together Walks give us a unique opportunity to put our information and knowledge into action. They bring our community together to support our loved ones with FM or Chronic Pain.

Every person involved in these Together Walks can have a positive influence on their community. It makes it possible to share with people worldwide just how important it is to be aware of FM and Chronic Pain.

Below are a few of the things that YOU can do to make a difference by being a part of Together Walks.

  • Raise FM awareness by educating local communities and political leaders about this condition and its impact
  • Alleviate stigmatization of people suffering with FM and chronic pain diseases
  • Create more pilot research funding, especially in the field of effective integrative treatments and new exploration in areas such as small fiber neuropathy, cervical cord compression, and myofascial release which promises new treatments
  • Increase support by providing local, accessible resources and information for daily living to patients
  • Promote awareness of the ramifications, including financial consequences, of chronic pain to the public, legislators, medical community and government agencies

We want you to remember that YOU can make a difference! Invite your friends, family, and neighbors to join us in this wonderful event.

Together Walks to combat chronic pain public health crisis

50 percent of all veterans and 80 percent of veterans returning from Iraq and Afghanistan suffer with chronic pain.

News – FOR IMMEDIATE RELEASE

February 7, 2017

LOGAN, Utah – The National Fibromyalgia & Chronic Pain Association, a global community supporting individuals living with fibromyalgia and other chronic pain diseases, will join for 1K/5K Together Walks in cities across the nation in honor of Fibromyalgia Awareness Day on May 12.

Walks will be held in California, Oregon, Illinois, North Carolina, Virginia, Kentucky, Connecticut, Tennessee and Pennsylvania. The events include a 1K/5K walk, an educational program, a health expo, a raffle and musical entertainment. Individuals can also raise funds and awareness in their local community by creating a team in the Virtual Together Walk.

“One in three U.S. adults, 50 percent of all veterans and 80 percent of veterans returning from Iraq and Afghanistan suffer with chronic pain,” said Jan Chambers, NFMCPA president and founder. “Life-altering, chronic pain is real, and effective pain relief is needed now. We cannot ignore the public health crisis of chronic pain any longer.”

Reports by the U.S. Institute of Medicine and the Department of Defense show that more than 100 million American men, women and children are impacted by chronic pain and that chronic pain costs the nation $635 billion annually in health care costs and lost productivity.

Fibromyalgia – one of many invisible, chronic pain diseases –  affects 5 million Americans, according to the National Institute of Arthritis and Musculoskeletal and Skin Diseases. The illness involves long-term body-wide pain, fatigue, sleep disturbances, memory problems and impaired functionality.

“Untreated pain such as fibromyalgia has a devastating impact on individuals, families, communities and our nation. The opioid crisis reflects the lack of available treatment options,” Chambers said. “Your voice matters. Join Together Walks where people in pain have a voice.”

Together Walks are open to the public, individuals living with chronic pain, and their friends, family and caregivers. The walks unite communities to advocate for better access to care, to encourage and fund research into integrative treatments and to increase fibromyalgia awareness, education, resources and support.

Through joining or donating to Together Walks, individuals can:

  • Raise fibromyalgia awareness by educating local communities and political leaders about the disease
  • Alleviate stigmatization of people suffering with chronic pain diseases
  • Create more research funding for new exploration in areas such as small fiber neuropathy, cervical cord compression and myofascial release that may bring new pain treatment
  • Increase support by providing local, accessible resources and information for daily living to patients
  • Promote the ramifications, including financial consequences, of chronic pain to the public, legislators, medical community and government agencies.

Together Walks will be held the following dates in the following cities:

Together Walks in Louisville, Kentucky; Nashville, Tennessee; and Portland, Oregon, will coincide with September Pain Awareness Month. Dates are pending.

To donate to or register for a Together Walk, visit crowdrise.com/togetherwalks. For more information, visit togetherwalks.org.

All Together Walk and NFMCPA leaders are volunteers. To volunteer or host a Together Walk in your city, contact the NFMCPA at info@togetherwalks.org.

About the National Fibromyalgia & Chronic Pain Association (NFMCPA)
25 Federal Avenue, Logan, UT  84321; (O) 801-200-3627; (F) 435-753-3556

NFMCPA, a not-for-profit organization, supports individuals living with fibromyalgia and other chronic pain illnesses by raising awareness through community outreach, education, advocacy and networking. Visit: http://www.fmcpaware.org/, www.facebook.com/nfmcpa, www.twitter.com/fibroandpain.

CONTACT

Amanda Wray, Communications Director
amanda.nfmcpa@gmail.com; (O) 801-200-36278

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Virtual Together Walk

DATE:  May 1-31, 2018
LOCATION:  In Your Community or Online
CREATE AN EVENT:  Events.fibroandpain.org
*JOIN CONVERSATION: Virtual Together Walk Facebook Event

The National Fibromyalgia & Chronic Pain Association are delighted to host a Virtual Together Walk just for you! Please invite your family, friends, colleagues, elected officials, and healthcare providers to a healthy, fun event to raise awareness and research funding for fibromyalgia.

Why a virtual walk?

It’s for YOU.

We’ve organized a virtual Together Walk so you can form fundraising and friendraising teams online, even while you are at home. Everyone can participate regardless of health status or ability to travel to specific locations. You can participate in the Together Walks by donating, fundraising, or walking locally. The changes that you make for people impacted by life-altering, chronic pain diseases is amazing and appreciated.

How does a virtual walk work?

A virtual walk raises awareness of chronic pain diseases and funds for research. It is created online and can have a live event in the community. Both use The HUB or events.fibroandpain.org website. For NFMCPA recommendations for a successful community event, use the step-by-step guides below.

Online

  1. Join the Virtual Together Walk and set a team fundraising goal. Form a team of your friends, neighbors, support group members, and family. Or choose to participate on your own, knowing you are part of something bigger! Raise funds for research. For ideas, check out the fundraising toolkit.
  2. Order the official Together Walk t-shirt to raise awareness everywhere you go! You make a difference.

Live in your community

  1. Join the Virtual Together Walk and set a team fundraising goal. Form a team of your friends, neighbors, support group members, and family. Or choose to participate on your own, knowing you are part of something bigger! For ideas, check out the fundraising toolkit.
  2. Pick a location and date to host your local walk. Rolling, strolling, walking, or running is best scheduled during the month of May in celebration of May 12 Fibromyalgia Awareness Day. Choose your distance: you may walk around the block, do a 1K walk at the local mall, or even try a longer walk or run around your neighborhood. Do what you can. There is no distance too short. Post a team update on The HUB with the details! Want an example? See Terry McSweeney’s 2016 Virtual Team – Fibromyalgia Pathways.
  3. Order the official Together Walk t-shirt, and create team signs to raise awareness during your local walk.
  4. Take a photo of you or your team and share it on social media or email it to us at info@togetherwalks.org. We invite you to use #TogetherWalks and #IWalkForFibro. Tag us @togetherwalks on Twitter, Instagram, or Facebook.  We invite you to share anyway or anywhere!

North Carolina Together Walk

DATE:  Saturday, May 6, 2017
TIME: 8:30 AM Registration; 10:30 AM Walk Opening
LOCATION: Clayton Community Park
ADDRESS:    1075 Amelia Church Road, Clayton, NC 27520
REGISTER: crowdrise.com/NCTogetherWalk
*For step-by-step registration instructions, please CLICK HERE.
JOIN CONVERSATION:  North Carolina Together Walk Facebook Event

Ally Against Pain Cortney Petit, in collaboration with the National Fibromyalgia & Chronic Pain Association, is delighted to host a Together Walk.  Come and meet others!  Please invite your family, friends, colleagues, elected officials, and healthcare providers to a health and fun event to raise awareness and research funding for fibromyalgia.


 

Want to help out? We love our volunteers!  Please go to follow these easy steps to learn more and sign up.  Thanks!

1) Click here to see the online signup.
2) Review the options listed and choose the spot(s) you like.
3) Sign up! It’s Easy – you will NOT need to register an account or keep a password.


Interested in advertising, sponsorship, or exhibitor opportunities? Contact the Clayton team at cortneypetit@gmail.com or 910-554-6202.

Louisville Together Walk

DATE: September 2017
TIME: Coming soon!
LOCATION:  Coming soon!
ADDRESS:    Louisville, KY
REGISTER: Coming soon!
*For step-by-step registration instructions, please CLICK HERE.
JOIN CONVERSATION:  Coming soon!

Kentuckiana Fibromyalgia Support Group, in collaboration with the National Fibromyalgia & Chronic Pain Association, is delighted to host a Together Walk.  Come and meet others!  Please invite your family, friends, colleagues, elected officials, and healthcare providers to a health and fun event to raise awareness and research funding for fibromyalgia.

Check back for details soon! We’re excited to launch registration in January and hope to see you all there!


Interested in advertising, sponsorship, or exhibitor opportunities? Contact the Louisville team at 812-207-5728 or fibromeetup@gmail.com.

Please click here to learn more about our Louisville organizer or visit visit www.kentuckianafm.org.