What is fibromyalgia?

Who is affected?

This invisible, life-altering condition causes 2-4% of women, men and children of all backgrounds worldwide to suffer.  (That’s 10 million Americans alone.)  The disorder can strike suddenly or occur as a gradual increase in symptoms, indicating changes in the central nervous system (neuroplasticity).  Sensory information (such as light, sound, and touch) becomes amplified by the central nervous system, causing the brain to respond with increasing pain and symptoms.  FM severity often increases over time and may become disabling.

FM takes its toll on once healthy individuals, especially between ages 20-60.  Escalating stress and fear of what might lie ahead if symptoms worsen can contribute to anxiety and depression.  There are no cures for fibromyalgia; however, as with any illness, some symptoms can be controlled with carefully improved lifestyle changes.

FM is a physical disorder, not a psychological condition. The most common constellation of FM symptoms (widespread chronic muscle pain, sleeplessness, relentless fatigue, cognitive dysfunction, and a host of other overlapping conditions like TMJD, IBS, migraine, interstitial cystitis, metabolic syndrome, endometriosis, and vulvodynia) can wax and wane over time.

For more information, click here go to and for survey results of symptoms other than pain, click here.

NFMCPA Celebrates Launch of Together Walks!!

The National Fibromyalgia & Chronic Pain Association (NFMCPA) has partnered with local organizations in three U.S. cities to host its inaugural Together Walks in May, fulfilling the organization’s mission to raise fibromyalgia awareness and fund research into the disorder that will lead to better treatments.

The Together Walks will be held in Richmond, Virginia, on May 7, and Coral Springs, Florida, and Louisville, Kentucky, on May 15. The USATF-sanctioned 1K Together Walks will be held in local parks and feature live music, health vendor expos, and educational and inspirational fibromyalgia programs, in addition to the walk. Participants will receive an event t-shirt and educational materials about fibromyalgia.

Fibromyalgia is a chronic condition characterized by generalized pains along with other symptoms such as unrefreshing sleep, stiffness, and cognitive dysfunction. An estimated 10 million Americans, 2-4% of population, have fibromyalgia as a primary diagnosis.

Through Together Walks, the NFMCPA is creating an opportunity for patients with this diagnosis to have an action-oriented, healthy event for their friends, family, neighbors, and health care providers to support them in a positive, uplifting way. These events are foundational for the NFMCPA to continue strengthening its four tenets: increase of support, awareness, education, and research globally.

“The National Fibromyalgia & Chronic Pain Association is building on its current, personal campaign of ‘Your Voice Matters: Make Fibromyalgia Visible’ to empower people with FM to take the next step of actively engaging their communities to participate in an event,” NFMCPA President Jan Chambers says. “Active engagement is the next step after raising awareness.”

Based on previous experience, the NFMCPA anticipates at least 250 people at each walk and more than 1,000 people in a virtual walk for the 2016 Together Walks. The virtual walk provides a platform for people to create teams online, from the comfort of their home. Everyone can participate despite their health status or ability to travel to specific locations.

Together Walks unite communities in the ideology that together we can make a difference, raise FM awareness, advocate for better access to care, and encourage and fund research that leads to better treatments.

The National Fibromyalgia & Chronic Pain Association brings together patients, policymakers, and healthcare, medical and scientific communities to transform lives through visionary support, advocacy, research, and education of fibromyalgia and chronic pain illnesses.

To register for a Together Walk near you, please visit http://www.crowdrise.com/togetherwalks.

Celebration in Coral Springs!

Meeting new friends and making fibromyalgia visible – May 12 Fibromyalgia Awareness Day

DATE:  Sunday, May 15, 2016
TIME: 9:00 AM registration; 10:00 AM Walk Opening
LOCATION:  North Community Park
ADDRESS:    5601 Coral Springs Drive, Coral Springs, FL
REGISTER:  crowdrise.com/togetherwalkcoralsprings
JOIN CONVERSATION:  Together Walk Coral Springs Facebook Event

Florida Fibromyalgia & Chronic Pain Association, in collaboration with the National Fibromyalgia & Chronic Pain Association, is delighted to host a Together Walk.  Come and meet others!  Invite your family, friends, colleagues, elected officials, and healthcare providers to a health and fun event to raise awareness and research funding for fibromyalgia.

Want to help out? We love our volunteers!  Please go to follow these easy steps to learn more and sign up.  Thanks!

1) Click this link to see our Sign-up on VolunteerSpot: http://vols.pt/oXsTRi
2) Review the options listed and choose the spot(s) you like.
3) Sign up! It’s Easy – you will NOT need to register an account or keep a password on VolunteerSpot.

Interested in advertising, sponsorship, or exhibitor opportunities? Contact the Coral Springs team at floridafibro@gmail.com.

Click here to learn more about our local organizer!

Celebration in Louisville!

Meeting new friends and making fibromyalgia visible – May 12 Fibromyalgia Awareness Day

DATE:  Sunday, May 15, s016
TIME:  9:00 AM registration; 10:30 Walk Opening
LOCATION:  Brown-Foreman Lawn, Waterfront Park
ADDRESS:    1301 River Road, Louisville, KY
REGISTER:  crowdrise.com/togetherwalklouisville
JOIN CONVERSATION:  Together Walk Louisville Facebook Event

Kentuckiana Fibromyalgia Support Group, in collaboration with the National Fibromyalgia & Chronic Pain Association, is delighted to host a Together Walk.  Come and meet others!  Please invite your family, friends, colleagues, elected officials, and healthcare providers to a health and fun event to raise awareness and research funding for fibromyalgia.

Want to help out? We love our volunteers!  Please go to follow these easy steps to learn more and sign up.  Thanks!

1) Click this link to see our Sign-up on VolunteerSpot: http://vols.pt/YC33rk
2) Review the options listed and choose the spot(s) you like.
3) Sign up! It’s Easy – you will NOT need to register an account or keep a password on VolunteerSpot.

Interested in advertising, sponsorship, or exhibitor opportunities? Contact the Louisville team at 812-207-5728 or fibromeetup@gmail.com.

Click here to learn more about the KFSG or visit www.kentuckianafm.org.

Celebration in Portland!

Meeting new friends and making fibromyalgia visible – May 12 Fibromyalgia Awareness Day

DATE: September 2016
TIME:  TBA
LOCATION:  TBA
ADDRESS:  TBA
REGISTER:  crowdrise.com/togetherwalkportland
JOIN CONVERSATION:  facebook.com/Together Walk – Portland, OR

(Portland Fibromyalgia Support Group), in collaboration with the National Fibromyalgia & Chronic Pain Association, is delighted to host a Together Walk.  Come and meet others!  Please invite your family, friends, colleagues, elected officials, and healthcare providers to a health and fun event to raise awareness and research funding for fibromyalgia.

Want to help out? We love our volunteers!  Please go to (volunteer.spot) to learn more about the Purple People and sign up.  Thanks!

Celebration in Richmond!

Meeting new friends and making fibromyalgia visible – May 12 Fibromyalgia Awareness Day

DATE:  Saturday, May 7, 2016
TIME: 10:00 AM registration; 11:00 AM Walk Opening
LOCATION:  Deep Run Park
ADDRESS:    9900 Ridgefield Parkway, Richmond, VA
REGISTER:  crowdrise.com/togetherwalkrichmond
JOIN CONVERSATION: Together Walk Richmond Facebook Event

Richmond Fibromyalgia and Chronic Pain Association, in collaboration with the National Fibromyalgia & Chronic Pain Association, is delighted to host a Together Walk.  Come and meet others!  Please invite your family, friends, colleagues, elected officials, and healthcare providers to a health and fun event to raise awareness and research funding for fibromyalgia.

Make fibromyalgia visible with us in Richmond on May 7! We are excited to feature NFMCPA president Jan Chambers in our educational and inspirational program. Throughout the walk, the New Originals with Carroll Ellis will perform live music. Face painters and yoga instruction is available FREE! We also have more than $2000 in raffle prizes!

Want to help out? We love our volunteers!  Please go to follow these easy steps to learn more and sign up.  Thanks!

1) Click this link to see our Sign-up on VolunteerSpot: http://vols.pt/zyQWYX
2) Review the options listed and choose the spot(s) you like.
3) Sign up! It’s Easy – you will NOT need to register an account or keep a password on VolunteerSpot.

Interested in advertising, sponsorship, or exhibitor opportunities? Contact the Richmond team at 804-859-4622 or sue@richmondfirbo.org.

Click here to learn more about the RFCA or visit http://richmondfibro.org or follow the group on twitter @RichmondFibro.

Celebration in Salt Lake City!

Meeting new friends and making fibromyalgia visible – May 12 Fibromyalgia Awareness Day

DATE:  May 2017
TIME:  TBA
LOCATION:  Salt Lake City
REGISTER:  crowdrise.com/togetherwalksaltlakecity
JOIN THE CONVERSATION:

Utah Fibromyalgia & Chronic Pain Association, in collaboration with the National Fibromyalgia & Chronic Pain Association, is delighted to host a Together Walk. Come and meet others! Please invite your family, friends, colleagues, elected officials, and healthcare providers to a health and fun event to raise awareness and research funding for fibromyalgia.

Want to help out? We love our volunteers!  Together Walk Salt Lake City is in planning stages.  Please click here to learn more and sign up or contact us at info@fmcpaware.org.  Thanks!